My best friend Ana came again last night, yep, Anaphylaxis.
Get this, I took the kids to the local university pool and there were a group of young men swimming who were highly cologned up. Even after a couple hours of swimming, these guys STILL reeked of cologne.
Sure enough, I had gotten enough exposure to trigger a reaction. Thankfully, I was able to get the kids to a friend’s house before things got out of control and then called 911.
The good news, when I was in the ICU last month we came up with a very effective treatment. Racemic Epinepherine rocks! It only took about a 15 minute nebulizer treatment with the Racemic Epinepherine to reverse the swelling of my throat. That is the most effective treatment yet!
We are heading in the right direction with that. (Well, I also had Zyrtec/Claritin/Singulaire/Advair/Epipen/SQ epi/IV Benadryl/IV steroid onboard, but it absolutely was the Racemic Epi that did the trick.)
Well, other good news… I have an appointment at the Mayo Clinic in MN next month. After an entire year of this nonsense, I am more than ready for a second opinion.
They have some docs who specialize in anaphylaxis, plus they are a renowned institution. The appointment will take 3-5 days, with a hotel stay at night.
If you think of it, please pray for wisdom for my doctors. How wonderful it would be to return to good health!!!
Tomorrow night is my Valentine’s treat…yep Firehubby got me tickets to Keith Urban and Sugarland and it is tomorrow!
This is how I will look at the concert…since I have to wear a mask. I don’t want to end up in a hospital in downtown LA if Ana decides to come with us...
This is is another option...
But, I do have more fashion choices thanks to the swine flu...
Or, people may just think I am doing a tribute to Michael Jackson...
What look do you like best for my date night with Firehubby?
26 comments:
Pink bandana, definitely! I mean, with country music, you'll fit right in with a bandana! (oh, dear lawd, do I LOVE me some Keith Urban.. I am SO jealous that you get to see that simmering hunk of manliness in person! and Sugarland.. oh, girl! I grew up in Nashville and know my country.. you are TRULY blessed!). I am saying a prayer right now for God to protect you throughout the concert; what a scary thing it could be if you didn't have Him to cast your fears on!
And for the record... Firehubby rocks.. what a great gift! Have fun... and tell us all about it!
WHAT..... So glad that appointment is made.
I agree with Pam, bandana for sure, not sure pink is your color, but the bandana will fit right in.
See you tomorrow.
I vote for whatever works the best. How awful to have to deal with what other people are smelling like...good or bad. I think about you all the time now when I run into fragrances. Thank God they make unscented laundry soap & other soaps.
Hoping that you have a great time at the concert. I am jealous...also praying that your appointment goes well.
Bless your heart! Thank goodness you're okay. I'm glad you have found the right combination of drugs to get you through these episodes.
Have an absolute blast at the concert!! :)
Oh Julie,
I'm so sorry to hear about yesterday..I couldn't imagine being that sensitive to reactions like everyday fragrances..
I am praying for wisdom and great things to happen on your stay with the appt. If their are ever any special prayer requests feel free to come see me or my email address is on my blog too..
ozarkmom04@yahoo.com
I believe the bandana is the best..cordinate to what color scheme you will be wearing.. and take a pic of you two before your on your way!!
Hugs & have a great time!!
Stephanie
Praying for you.....Hope you get some answers..
Holding you up hun, really hope the Mayo docs can 'do something'.
And I'm sure you'll look smoking whatever you wear.
X
Glad you're rxn wasn't too bad and you're still able to go to the concert!! Have fun!! ;-)
Julie - if you all need a place to stay, or whatever, we are very very close to the airport. (IN the Twin Cities, not Rochester.) We are about 90 miles from Rochester, so maybe you are flying in there.
But, if you have any time, we would love to have you over. Good luck with this. Lots of my friends go down to Mayo and get lots of help. It must be so scary!!
I have to tell you I love your mom blogs. I am going to start a journal thing for my daughter Claire and I to share, just like you suggested!
Anyway, we would love love love to see you, but completely understand if its too much, or you don't have time.
Best of luck to you, Kathleen
Pink bandana seemes apropriate for a Country concert! You lucky ! Lucky about the concert i mean not your visit from Ana! Glad to hear your new treatment worked. And yes prayers definately!
so many options for your protective equipment! I will be praying for everything for you visit to Mayo!
Have so much fun at you concert! I'm so jealous!
I hope that you have the best time and there is NO ana!
Have a great time at the concert! Hopefully Ana doesn't like country music :).
I'm glad you're okay!
I like that first one best, plus I think it would be much more effective than the bandana.
If that doesn't work, you could try sticking tampons up your nose.
I think knowing you, you could rock any of the above looks. I'm so sorry that happened but thank goodness for the right medications!
I'm sorry you got sick again, but that is hysterical with the masks. The pink one...I like the pink one. :)
I finally hopped on over to your blog after talking about your name on Rachel and Mr. Daddy's. You see- we share the same name so I had to discuss it. It just wasn't an option. I have been following you Firefighter hubby for a little while now and knew about your friend Ana. I have read several of your posts just now and must admit- I'm addicted. Can't wait to start reading more!
The only thing I like about Ana is that she is bringing you closer to where I live. I'm sorry you had to go through this again. Enjoy the concert. I vote the white mask with big red lips drawn on it so Keith can see it. ;o)
The pink bandana will look great! Praying for physician wisdom and discernment. Keep us posted on the outcome!
Oh I think the pink bandana would be very stylish!! I will definitely send positive thoughts that your appt goes well!! Keep us posted!
Oh goodness. I can't imagine how difficult it must be to head out into public knowing that anything could set you off. Goodness. =0( Hope you have a blast at the concert, ut no blasts of perfumes or colognes.
I'm praying for wisdom for your doctors!
Oh, Julie...I'm so sorry to learn that you're continuing to struggle with your allergies. You can guarantee that I'll keep you AND your doctors in my prayers as you try to find some relief from what ails you. Have tons of fun at the concert...I say bandana all the way!:)
Praying for you. Keep us posted about the dr appt. Now...It's Monday woman!!! HOW was the concert??? I hope y'all had a wonderful time!
I hope you had a fantastic time at the concert and that your mask did not take away from your fun. I am so sorry that you have to deal with this. Ana is my worst nightmare. I just said a prayer for you. Keep us posted on the Mayo appt.
I'm so glad you are going to Mayo! And I hope you can get this problem fixed. You can't live like this!
Do you really think the bandana will help? Tell Keith & Jennifer I said Hey!
The masks are funny, which one did you chose? :)
I will keep the docs and you in my prayers when you go for your visit.
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